Recovering from Sepsis | Sepsis Trust

have not missed out on many of these effects. I most certainly have missed out on assistance or recognition of it.  This is a very tough call.  Nellibell

Common Long Term ProblemsPost Sepsis Syndrome (PSS) is the term used to describe the group of long term problems that some patients who have experienced severe sepsis can suffer during their rehabilitation period.The effect of any critical illness and spending time being treated in a Critical Care Unit is already recognised by health care professionals as causing certain long term problems for up to two years afterwards. However, sepsis can cause additional problems which may not become apparent for several weeks, for example, recurring infections during the rehabilitation period.THE LENGTH OF TIME SPENT IN HOSPITAL CAN ALSO AFFECT REHABILITATION.It is important to remember that not everyone experiences problems after being critically ill and the length and severity of the sepsis and the fitness of the individual prior to their illness has a marked impact on how quickly they recover.These problems can be divided into physical or psychological and emotional.Physical:Lethargy / excessive tirednessPoor mobility / muscle weaknessBreathlessness / chest painsSwollen limbs (excessive fluid in the tissues)Joint painsInsomnia (due to pain / breathlessness)Hair lossDry / flaking skin and nailsTaste changesPoor appetiteChanges in visionChanges in sensation in limbsRepeated infectionsPsychological and emotional:Anxiety / fear of sepsis recurringDepressionFlashbacksNightmaresInsomnia (due to stress or anxiety)PTSD (Post Traumatic Stress Disorder)Poor concentrationShort term memory loss Click here to download – Questionnaire for Support Groups 2016Long Term Recurring InfectionsA very small percentage of sepsis survivors suffer recurring infections during their rehabilitation period.Occasionally, this may last for several years. These infections can present as a milder version of the original sepsis experienced by the patient or as infections starting in different areas of their body. They often need treatment with antibiotics and can be very wearing both physically and mentally.THANKFULLY, MOST OF THESE PROBLEMS DO SETTLE ON THEIR OWN IN TIME.

Source: Recovering from Sepsis | Sepsis Trust


That part of the process is done. Xmas and Kaybee’s Birthday. It was a pleasant experience despite the rising horrors at time and the sneaking shame. I did not contribute in any of the ways a woman is ” supposed” to do. Even less this year with the hospital week just before it and the staggering weakness I am home with.

I refuse to go under this time – to shame , loneliness or sorrow. But I still write about it because I KNOW how many people are out there – lost like me.

Not fitting. Not able to make choices or participate in the activities that the people around them are in. I was like it as a young girl and woman. Like it when I encountered sobriety and now once again with this illness and without Izzy.

I entered adulthood at the verge of the era when all girls were expected to marry and cook and clean and be groomed and I have spent a lot of my life traumatised between the world and the blessedly free world that came to me in the early 70s when the standards by which I were measured changed dramatically.  I had flourishing years living by the codes I valued, doing the things that interested me – but now I find myself in another cycle of defeat. Fuck ’em all – says I. Fuck em all.

SO – this is a tough night. It don’t matter. I have done it tough for too long now and am ran out of the emotion to match it.  In my own way I am afraid. I have black spots before my eyes which I didn’t have till this last infection and antibiotics regime.  I do not yet have the strength to go and get my shopping. So – I go a little hungry or eating poorly. I fail at situations like today when everyone else is contributing and I allow random sneering comments to brush against me.

I admit to a sneaking puzzlement about being left here by everybody after coming home from hospital. I know they were all occupied getting Xmas ready but I actually needed some shopping and help. I don’t know where to go for it.

Its late and I am tired and hurt in a corner of my happiness at my beautiful child and grandchildren.

Its a mere slip of the intelligence. Tomorrow we proceed. Tomorrow my son and his girl come to stay from 1000kms away.

I shall think about no more tonight. I shall simply read in bed.

Happy Birthday Child.



This old house is falling down around my ears
Im drowning in the river of my tears
When all my will is gone you hold me sway
I need you at the dimming of the day

You pulled me like the moon pulls on the tide
You know just where I keep my better side

What days have come to keep us far apart
A broken promise or a broken heart
Now all the bonny birds have wheeled away
I need you at the dimming of the day

Come the night youre only what I want
Come the night you could be my confidant

I see you on the street in company
Why dont you come and ease your mind with me
Im living for the night we steal away
I need you at the dimming of the day
I need you at the dimming of the day



Izzy – I need you at the Dimming of the Day.


Alas! How dreary would be the world if there was no Santa Claus! There would be no childlike faith then, no poetry, no romance to make tolerable this existence. Francis P. Church | THE OLD PROVERBIAL RECOVERY

“The giver of every good & perfect gift has called upon us to mimic GOD’s giving, by grace, through faith, & this is not of ourselves…!!!” St. Nicholas of Myra…!!!

Source: Alas! How dreary would be the world if there was no Santa Claus! There would be no childlike faith then, no poetry, no romance to make tolerable this existence. Francis P. Church | THE OLD PROVERBIAL RECOVERY


It turned out I was most unwell. I finally gave in and went to Emergency and next thing I am on IV drips of 3 kinds of antibiotics and fluids and in hospital for 5 days. I had infection in bladder and kidney and cellulitis in the left leg and I was most unwell again.

I did however have a lovely time in hospital. Its Xmas and there was a happiness all through the ward and excellent nurses. I made it one more time. Now family is here from Wagga and Sydney.

I am going to bed just after midnight after being attached to drips all week. Good Night World.



I am home for Xmas. This time I had 3 major infections and cellulitis so its been 5 days oN IV antibiotics and fluids. In Hospital. Came on quickly as usual. I made it through once more and this time I had more tools to use in speaking with the medical profession. Showed the group to our infection control nurse. She had no idea of the things we know.
Anyway, it felt far better with all the stories I have read here than my last 12 admissions since the coma in 2014. In those times I did wonder whether perhaps I was actually crazy.
Xmas in hospital was fun and the Doc and Nurses did face painting and decorating. I was able to support the lovely roommate who is only a few months out of major organ collapse and sepsis and has been on valium and thinking she had depression. We are doing good things here. Thank you to the people who run the group. We are spreading the information.

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