Category Archives: OTHER PEOPLE OTHER PLACES

“Be a duck, remain calm on the surface and paddle like hell underneath.” Michael Caine | THE OLD PROVERBIAL RECOVERY

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“Don’t duck the most difficult problems. That just ensures that the hardest part will be left when you are most tired. Get the big one done – it’s downhill from then on.”― Norman Vincent Peale

Source: “Be a duck, remain calm on the surface and paddle like hell underneath.” Michael Caine | THE OLD PROVERBIAL RECOVERY

briefly before bed

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I HAVE NOT FOUND MYSELF TODAY.

I am wearied and sad in an aimless off-handed way.

I suppose it is one of those ‘IN BETWEEN’ times. It reminds me of Tugun in 2002.

Bring me sunrises and views and birds on my verandah.

Bring me beauty and grace and dignity

Remove me from drunks and drug users.

Bring me to MY place.

Bring me to meetings and water and companions and a passing parade.

Bring me to the Children.

Bring me home.

lynne-camera

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And I shall finish with another Sepsis story. So many of us have suffered this way and are suffering.

Bri

This is Part One of my Sepsis Survival Story.
Hello, thanks very much for letting me join this group.
My name is Brian, & I will tell you my story in 2 parts.

I went into Hospital for removal of a gallstone in cystic duct & to have a plastic stent fitted, on Jan 6th 2017. There was a small perforation in my duct by mistake during surgery. This developed into Biliary Sepsis. I didn’t know what this meant at the time. At 39.1 degrees I didn’t know what was really being said to me, I was delirious. Having Severe Sepsis Infection, I was administered intravenously, directly into my veins, Antibiotics, Morphine, paracetamol, fluids & nutritional liquids. If there was anything else like anti-sickness I was not aware. I was told I had raised inflammatory markers, although I could not process a question to ask what it meant as I was drifting to sleep.
Whilst at my worst, I knew I was very ill. I remember getting ready to die. I realised I was not afraid of dying, I was scared of what I would leave behind. Very emotive, but true. I knew I had to be strong to survive and be positive, as I didn’t want to leave my wonderful Wife, family and rabbits behind, and this wonderful life we have, has to continue.
It wasn’t until I left the Hospital, that my Wife Nicky & I started research into Biliary Sepsis & Sepsis. We are shocked & cannot believe we were not offered any information, no aftercare offered, and not told to look for signs of re-occurrence, as this is a known Sepsis habit.
I was sent home with Oral Antibiotics. 5 days after the antibiotics were finished I started feeling ill again.

On the 20th January 2017 I went to Doctors. The Doctor I saw didn’t take any notice in what I was saying, and completely ignored the fact I had surgery 14 days ago. He didn’t want to know about the Biliary Sepsis I had just experienced. Instead he pressed as hard as he could, causing me to grab the inspection bed with both hands & arch my back rigid off the bed, the pain was stupidly intense. When I told him to stop pressing hard & to stop holding his hand down, on the surgical site, as he was hurting me, he just turned away, walked off and said he had finished the examination, I had to go as he was running an hour late and next patient was due. I didn’t even have my full appointment time.
I tried to get up but the waves of pain were too much, I collapsed back on the inspection bed. Dr Potts took no notice & didn’t help me. I used every ounce of strength to sit up on the inspection bed, I managed on the second attempt to sit on the edge, then I was sweating & swaying, feeling light headed. He saw this from his chair but didn’t help, he didn’t care, and he said I had leave. I told him I felt ill and about the worry & anxiety of the early warning signs of re-occurring Sepsis, and the symptoms I was having. He retorted examination was over. I left the room in considerable pain, everything I told the Doctor fell on deaf ears, I found him dismissive, ignorant and uncaring. My Wife was with me & witnessed it all.

The following day my temperature range was 36.8 to 38 degrees. My temp rising around 38 I was having an occasional shiver & a nasty thumping headache over my right eye. I felt stiff, my left shoulder very stiff, and my pain still very high in surgical area from previous day. We both knew these were early warning signs to keep a watchful eye on.

The next day temperature was spiking at 38 degrees & up and down again. I was losing appetite, picking at food, I was feeling extra tired, slightly nauseous in the morning, and I still had the thumping headache over my right eye. My temperature range was 36 to 38. I was drinking lots of fluids, about 4 litres of water, dosed up, but couldn’t shift the headache, which was starting to feel like a migraine.

Sorry for length of this story, it does need to be told. Part 2 will be in the next few days. It will start with a similar heading and will be dated Monday 23rd Jan 2017. Many thanks and good luck to all readers.

Bri Maze King ©
4.2.17.

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ICU patients’ outcomes improve when hospital staff also pay attention to families of the sick – Baltimore Sun

When her sister was in and out of intensive care last year, Theodora Peters noticed she no longer had to push so hard for information about her sister’s condition and treatment, or to stay by her bedside after visiting hours.”There seemed to finally be recognition that we were part of the team,” Peters said about the way the medical staff treated her and her sibling. “There was recognition we all needed to work together to get the best outcomes.”ADVERTISINGFor decades, hospital intensive-care units focused on facilitating the care provided by doctors and nurses to the gravely ill, while access was limited for patients’ families, partly so they wouldn’t get in the way. That’s beginning to change under a new approach known in medical circles as “family-centered care” that’s gaining traction in ICUs as hospitals look for ways to improve care and cut costs.

Source: ICU patients’ outcomes improve when hospital staff also pay attention to families of the sick – Baltimore Sun

Guide to intensive care – ICUsteps

This guide contains advice and information about intensive care. It tells you how critical illness may be treated and what recovery may be like. Not every patient will experience all of these things, but they are more likely to if they have been in intensive care for more than a few days. Most of this guide is written for patients but there is a section specifically for relatives and visitors. By reading the guide, relatives will learn what a patient’s recovery may involve and it will give them the answers to some of the questions they may have.Recovery is often a long and slow process. To begin with, patients may not feel up to reading this information, so if you are a relative, please keep hold of this booklet and pass it on when the patient is ready.One of the scariest things about having a critical illness is not knowing what’s going to happen. This section covers many of the questions that patients and relatives often have following a critical illness. It tells you what may happen and where you can find out more information. Each section covers a different stage of the process of treatment and recovery.This guide has been written by people who have either been treated in an intensive care unit or are close relatives of someone who has. It has also been reviewed by a wide variety of intensive care professionals.

Source: Guide to intensive care – ICUsteps

The Other: Myself: You Are Responsible

Drive all blame into oneAnd that one is you.Once this insight settles:“I am responsible for my life – for all my suffering, for my pain, for all that has happened to me and is happening to me – I have chosen it this way; these are the seeds that I sowed and now I am reaping the crop; I am responsible – once this insight becomes a natural understanding in you, then everything else is simple. Then life starts taking a new turn, starts moving into a new dimension. That dimension is conversion, revolution, mutation – because once I know I am responsible, I also know that I can drop it any moment I decide to. Nobody can prevent me from dropping it.

Source: The Other: Myself: You Are Responsible

Side Effects of Chronic Pain | The Mighty

Chronic pain isn’t just constant pain, though that would be more than enough for anyone to handle. The truth is that chronic pain always brings friends. These added challenges are obvious, but rarely taken into consideration by “healthy” people. Remembering that like all bullies, chronic pain travels with a gang can help to better understand the life of someone in chronic pain.

Source: Side Effects of Chronic Pain | The Mighty

THE RED SHOES

A DIFFERENT DISEASE BUT YET ANOTHER CASE OF BEING TREATED AND THEN SENT OUT INTO THE WORLD WITHOUT SUPPORT. THANK GOD FOR THE ONLINE COMMUNITIES. I CAME OUT OF YESTERDAY FEELING  “EMPOWERED” BECAUSE I HAVE REFUSED TO SIMPLY DO AS I WAS TOLD, OR AGREE WITH WHAT THE MEDICOS TOLD ME WHEN I DIDN’T AGREE AT ALL.  MANY OF THE ISSUES I HAVE ARGUED WHINGED AND ALIENATED PEOPLE OVER – HAVE PROVEN TO BE  TRUE. BRAVO TO ALL OF US.

From Sole to SoulWhen I was diagnosed with thyroid cancer in January 2015, my life changed.  This might seem an obvious statement, but it did not change in the ways you might expect.  Or at least, not only in the ways you might expect.There were tears, fear and grief.  A reshuffling of priorities.  Scheduling of surgeries and biopsies and medications and scans and blood tests.  So many bloody blood tests.But there was also a strength that emerged and continues to surge through me, like nothing I’ve ever felt before.  There’s a strange sense of relief.  Scintillating clarity.  Lots of hugs, and “I love yous”.  Precious nurturing.  Above all, a re-connection to spirituality, my relationship with which had become faint and trivialised in my life.  A sense that I truly am being taken care of, both physically and within a bigger picture.  And a red-hot feistiness that insists it’s not my time to go yet, with still far too much to do, see, achieve and experience on this planet.In short, I’ve become more myself this year than I have ever been.  I know who I am, what I need and what I want for myself, my health and my life.The strength and positivity I’ve found through this journey have not come about through band-aid like optimism. They’ve appeared when I’m honest, real and learning to move through life, day by day, with a focus on what works, what helps and what I need.In creating this blog, I want to share the journey with you.  Not just the journey of the challenges and practicalities of dealing with cancer (of which there was startlingly little information available), but also the gifts, strengths and inner resources this experience is revealing to me.  I want to share stories of recovery, insights, what worked, what didn’t and how we can make this journey a little less lonely for us all.

Source: THE RED SHOES

Eileen Rubin – ARDS Survivor – ARDS Global

Once at the ER, Eileen was placed on oxygen and admitted directly into the Medical Intensive Care Unit. That evening, her kidneys failed. A little over twenty-four hours later, she went into respiratory arrest and was intubated. Although a definitive precipitating cause was never revealed, Eileen was diagnosis with both Sepsis and Acute Respiratory Distress Syndrome. Eileen’s husband, parents, two brothers, and twin sister were told the prognosis of ARDS: her chances of survival were not good.Eileen was forced into a drug-induced coma, insulted with tubes and assaulted with machines throughout her body. As the days turned into weeks, the physicians told her family the grim reality of her illness: it was time to start thinking about removing her from the ventilator; it was a “quality of life issue” because if she did survive, they said, she would likely “never breathe on her own again.” Her family refused to give up hope and sat with her each day, all day, talking to her, singing to her, just holding her hand. A tracheotomy was performed after she was hospitalized for about two weeks since it was clear she was nowhere near getting off the ventilator.

Source: Eileen Rubin – ARDS Survivor – ARDS Global